The new normal: Chronic stay in the paediatric ICU

doi:N/A

eISSN: None / ISSN: None

Netharland Journal of Critical Care

2020, Volume 28, Issue 5 : 214-216

Article

The new normal: Chronic stay in the paediatric ICU

van de Riet L.

Alsem M.W.

Aziz B.

Namo H.

⁴

van Karnebeek C.D.

⁵

van Woensel J.B.M.

⁶

Pediatric Intensive Care Unit, Amsterdam Reproduction & Development research institute Amsterdam, Netherlands

Department of Pediatrics, Amsterdam Reproduction & Development research institute Amsterdam, Netherlands

Department of Pediatric Rehabilitation Medicine, Emma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Netherlands

⁴

Department of Pediatrics, Emma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Netherlands

⁵

Radboud University Medical Center, Nijmegen, Netherlands

⁶

Department of Pediatrics, Radboud University Medical Center, Nijmegen, Netherlands

Abstract

Advances in treatment options have resulted in a growing population of children who require chronic medical support in order to survive: children with medical complexity (CMC). Their complex medical needs are not easily met outside the hospital. The gap between the protective hospital environment and home proves to be extensive, which is why it is extremely challenging for this particular group of patients and their families to make that transition. In this case report, on the background of a child with medical complexity who endured an extremely lengthy admission to the paediatric intensive care unit (PICU), we will elaborate on the changes that are occurring in PICUs worldwide due to the growing CMC population as well as a transitional care unit as a possible intervention for this pressing issue. © 2020, Netherlands Society of Intensive Care. All rights reserved.

Keywords

Children with medical complexity

Intensive care

Parental empowerment

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